Advocacy & Awareness for Immune Disorders Association (AAIDA)

AAIDA’s next educational webinar: May 21st, 1:00-2:00 pm EST: “Sjogrens Syndrome: It’s Not Just Dry Eyes & Dry Mouth”

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Webinars

Sjogren’s Syndrome: It’s Not Just Dry Eyes and Dry Mouth

May 21st, 2021 1:00-2:00pm EST

AAIDA will host rheumatologist, Delfin Santos, MD, FACR, of Rochester Hills, MI for our 6th educational webinar during 2021.

Dr. Santos will discuss the following during his presentation:

  • Describe commonly associated conditions
  • Identify laboratory tests and findings
  • List treatment strategies including drug therapy and lifestyle

Dr. Del Santos, has been in private practice for 29 years and currently serves as Director of AARA Rochester Rheumatology Center in Rochester Hills, MI. Dr. Santos earned his medical degree from UCMM in Santiago, Dominican Republic and completed his Internal Medicine Residency Program at West Suburban Hospital Medical Center in Oak Park, IL. Dr. Santos completed his Fellowship in Rheumatology at Rush Presbyterian St. Luke’s Medical Center in Chicago, IL and served as Chief of the Department of Medicine and as Vice Chief of Staff at Ascension Hospital Medical Center in Rochester Hills MI.  Dr. Santos has also been on the Advisory Board for the American Behcet’s Disease Association for the last 20 years and is repeatedly named TOP DOC in rheumatology in HOUR Magazine Detroit.

Following his presentation, Dr. Santos will conduct a live 15 minute Q&A session with attendees

Chronic Illness 101: A Young Adult Patient Perspective

June 23rd, 2021 6:00-7:00pm EST

AAIDA will host patient advocate and University of South Carolina (USC) sophomore, Jessica Goddard, for our 7th patient educational webinar for 2021.

Jessica will discuss the following during her presentation:

  • Path to diagnosis
  • Access to care
  • Positives experiences she has gained as a result of her journey
  • Living as a college student with a Rare Disease during the COVID-19 Pandemic

Jessica Goddard is a student at the University of South Carolina (USC) Honors College pursuing a Bachelor’s of Science in Public Health and a minor in Business Administration. She is a member of and holds leadership in Alpha Epsilon Delta Pre-Professional Health Honor Society and Sigma Omega Upsilon International Business Fraternity on campus at USC. She is also highly involved with the Immune Deficiency Foundation (IDF) as a volunteer, advocate, and lobbyist and serves on the coalition to assemble a NORD Rare Disease Advisory Council in South Carolina. In January 2020, she was published by The State newspaper for her op-ed titled “South Carolina Universities and Colleges Must Do More to Get Students Vaccinated”. Jessica’s ultimate goal as a rare disease advocate is to bring hope and positivity to those going through their rare disease journeys.

Following her presentation, Jessica will conduct a live 15 minute Q&A session with attendees.

Liquid Gold: An Open Forum On IVIG: (Part II of II)

May 13th, 2021

Speciality pharmacist and patient advocate, Michael Rigas, PharmD, will continue to dive deeper into discussion topics regarding IVIG/SCIG issues that were not covered in Part I of this educational webinar series

Dr. Rigas will discuss the following:

  • Discuss the physician referral and onboarding process with an IVIG pharmacy company
  • Discuss how to make IVIG more affordable for the patient
  • Discuss the economics of IVIG in the eyes of the FDA, the drug maker and the insurance company
  • Discuss how to maximize the Clinical outcome and your experience with IVIG

 

Dr. Rigas is the Chief Clinical Officer, co-founder and principal at KabaFusion, an infusion therapy company dedicated to managing IVIG and other chronic and acute therapies nationwide. Prior to joining KabaFusion, Dr. Rigas was Associate Chief Innovation Officer for Pharmaceutical Care for Geisinger Health System and Chief Clinical Officer for VITALine CareSite Pharmacy Services.

Dr. Rigas graduated from USC School of Pharmacy with his Pharm.D. degree and completed his residency at UC San Francisco Hospitals and Clinics in 1982. His areas of expertise include antimicrobial therapy, immunoglobulin therapies (IVIG), nutritional support, inotropic therapies and many others.

Over the last 20 years, Dr. Rigas has managed or overseen the care of over 15,000 patients who have received over 20,000,000 grams of IVIG.

This presentation is an open forum event. Attendees can interact with Dr. Rigas and ask any questions they may have. This webinar will also be recorded live on May 13th and made available as a resource for patients on the AAIDA website soon after.

Liquid Gold: An Open Forum On IVIG (Part I of II)

April 28th, 2021

AAIDA hosted speciality pharmacist, Michael Rigas, PharmD, for our 5th educational webinar and first “forum” event of 2021.

Dr. Rigas will discuss the following during his presentation:

  • What is IVIG and how is it made
  • What diseases can IVIG be used to treat and what responses and side effects are expected
  • What IVIG products are available Currently and what are their characteristics

Dr. Rigas is the Chief Clinical Officer, co-founder and principal at KabaFusion, an infusion therapy company dedicated to managing IVIG and other chronic and acute therapies nationwide. Prior to joining KabaFusion, Dr. Rigas was Associate Chief Innovation Officer for Pharmaceutical Care for Geisinger Health System and Chief Clinical Officer for VITALine CareSite Pharmacy Services.

Dr. Rigas graduated from USC School of Pharmacy with his Pharm.D. degree and completed his residency at UC San Francisco Hospitals and Clinics in 1982. His areas of expertise include antimicrobial therapy, immunoglobulin therapies (IVIG), nutritional support, inotropic therapies and many others.

Dr. Rigas has worked on standardized coding for infusion billing, universal access via patient assistance plans and managing Medicare Part D issues in front of the California board of pharmacy and CMS regional managers. Dr. Rigas is a member of the American Society of Hospital Pharmacists, the National Home Infusion association, the American Academy of Neurology and the Clinical Immunology Society.

Over the last 20 years, Dr. Rigas has managed or overseen the care of over 15,000 patients who have received over 20,000,000 grams of IVIG.

Multiple Sclerosis & Specialty Pharmacies: An Overview Of Care & Treatment

April 6th, 2021

AAIDA hosted Class of 2022 PharmD Candidates, Alexis El-Khouri B.S., Flavia Pasca B.S., and Larissa Melnyk, B.S of Northeast Ohio Medical University for our 4th educational webinar of 2021.

Alexis, Flavia and Larissa will discuss the following during their presentation:

  • What is MS?
  • Current MS treatment
  • The future of MS therapy
  • Prescription coverage

Alexis El-Khouri is currently a 3rd year pharmacy student at Northeast Ohio Medical University (NEOMED) and is schedule to receive a PharmD in Spring of 2022. She earned her undergraduate degree, Bachelors of Science in Biochemistry, at Youngstown State University. Alexis is Co-founder and President of NEOMED’s Student Association of Specialty Pharmacy. In the future she plans to specialize in neurological conditions and autoimmune disorders.

Flavia Pasca is a 3rd year pharmacy student studying at Northeast Ohio Medical University, and is on track to receive her PharmD in the Spring semester of 2022. She earned her Bachelors of Science at Cleveland State University. Flavia is Co-founder and Vice President of NEOMED’s Student Association of Specialty Pharmacy. She is interested in becoming a clinical pharmacist and specializing in Neurology.

Larissa Melnyk is a 3rd year pharmacy student of Northeast Ohio Medical University with a background in engineering technology and entrepreneurship. Her goal after graduation is to use those skills toward improving specialty pharmacy opportunities.