Advocacy & Awareness for Immune Disorders Association (AAIDA)

Webinars

Born Into The Climate Crisis: The Effects Of Climate Change On Children

January 25th, 2023

Kicking off our next webinar series for 2023 will be AAIDA’s own Executive Medical Director, Jennifer Caicedo, MD, FACAAI, FAAP.

Dr. Caicedo will discuss the following:

  • The impact of climate change on children’s health and potential health implications associated with them
  • Identifying ways you can help to improve your child’s health outcome with the current evolving climate crisis
  • Latest research on climate change with asthma patients and treatment options available
  • Impact of air pollution exposure on specific organ systems and high risk populations

Jennifer Caicedo, MD, FACAAI, FAAP, is a practicing allergist/immunologist in Charlotte, N.C, at Carolina Asthma & Allergy Center. Dr. Caicedo is a Fellow of both the American College of Allergy Asthma & Immunology (ACAAI) and the American Academy of Pediatrics (AAP). Dr. Caicedo is Past President of the Charlotte Pediatric Society, where she still serves on the organization’s Board. She is also a Past President of the North Carolina Allergy Asthma & Immunology Society.  

Dr. Caicedo has been involved in multiple clinical research studies in food allergy, atopic dermatitis, eosinophilic esophagitis, and asthma as well as multiple national quality improvement studies.  Dr. Caicedo believes strongly in advocacy and has been actively involved in both her local and national medical communities. Dr. Caciedo was proud to assist in the efforts to obtain funding for one registered nurse for every local public Charlotte Mecklenburg School (CMS) as well as implementing stock epinephrine throughout CMS.

Post Covid-19 Autoinflammatory Disorders

December 14th, 2022
AAIDA hosted pediatrician, Ashok Gupta, MD, on December 14th for our 9th educational webinar of 2022.

Dr. Gupta will discuss the following:

  • Clinical case presentations and demographics
  • Therapeutic considerations and treatment options available
  • Prevalence of autoinflammatory disease states and potential prevention tactics
  • Impact of autoinflammatory conditions on patients after recovery
Dr. Ashok Gupta is a practicing pediatrician at SMS Medical College in Jaipur India and Chairman for the Rare Diseases Division and Pediatrics. Dr Gupta is also Chairman of Allergy Care India and current board member the Global Allergy & Airways Patient Platform (GAAPP).
Following his presentation Dr. Gupta will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.

Tips & Tools To Keep You Safe Online: Cyber Security Part II

October 19th, 2022
AAIDA hosted cyber security expert, Igor Pinchevskiy, for our 8th educational webinar during 2022. Igor will expand on his discussion around best practices to protect yourself from healthcare and online scams from his previous webinar on June 22nd, 2022.
Igor will discuss the following:
  • Best practices on how to create a secure password to keep your sensitive information safe
  • Tips for safely maneuvering around the world wide web and evolving technology
  • How to protect yourself from becoming a victim to “phishing” scams online
  • How to monitor your phone, computer and other electronic devices to avoid becoming a victim of cyber crimes

Igor Pinchevskiy began his career in Information Technology (I.T) in 1999 after graduating with a degree in Network Engineering.  Igor specializes in I.T. managed services, security assessments, vulnerability testing, and industry-specific cyber security and compliance standards. This includes HIPAA, NIST framework, PCI DSS, and PII. Igor runs an I.T. service and cybersecurity consulting firm specializing in helping nonprofits and businesses. Igor build, maintain and secures organizations I.T. environments by helping them to meet industry security requirements.

Following his presentation Igor will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.

Herramientas y Tips Para el Cuidado de Tu Salud

October 12th, 2022

AAIDA se complace en asociarse con Looms for Lupus y Latin Health Leaders para nuestro primer seminario virtual en Español durante el Mes de la Herencia Hispana que se celebra del 15 de Septiembre al 15 de Octubre. Nuestro panel de discusión incluirá a Estela Mata, Juana Mata  cofundadoras de Looms for Lupus y Migdalia Denis, Directora Ejecutiva de Latin Health Leaders.

Herramientas y tips para:

  • El cuidado de tu salud física
  • El cuidado de tu salud mental
  • Seguir tus sueños con enfermedades crónicas
  • Adherencia de tratamientos
  • Comunicación con tus Medicos

Estela Mata es la presidenta y cofundadora de Looms for Lupus, una organización sin fines de lucro que brinda concientización, defensa y apoyo sobre el lupus, la fibromialgia y la salud mental a quienes viven con estas afecciones, sus seres queridos y cuidadores. Estela ha trabajado en el cuidado de la salud por más de 30 años. Como líder comunitaria y defensora de la atención médica, se asocia y trabaja en iniciativas en colaboración con organizaciones locales, nacionales y globales, incluida la Oficina de Salud de las Minorías del Departamento de Salud y Servicios Humanos de los Estados Unidos y la Oficina de Salud de las Minorías de la Administración de Alimentos y Medicamentos de los Estados Unidos para aumentar la conciencia sobre la necesidad de diversidad en los ensayos clínicos de lupus. Es miembro del Equipo de Asesores Virtuales tanto para el Programa de Investigación All of Us y el Centro de Ensayos Digitales de Investigación Scripps y participante en el Consorcio de Salud Mental de la Congresista Grace Napolitano. Estela es una líder comunitaria que provee información, apoyo y recursos en Inglés y Español.

Juana Mata es trabajadora social infantil del Departamento de Servicios para Niños y Familias y a trabajado para el condado de Los Ángeles. Juana también es una de las cofundadoras de Looms for Lupus, una organización sin fines de lucro que brinda apoyo a los sobrevivientes de lupus, sus familias y cuidadores. Se dedica a crear conciencia, autodefensa y defensa del lupus, la fibromialgia y la salud mental.  Juana ha sido entrevistada por Telemundo sobre su experiencia con el lupus, compartió su historia con la California Chronic Care Coalition, My Patient Rights. Es embajadora nacional del programa de investigación All Of us de los NIH, así como miembro del equipo de asesores virtuales tanto del programa de investigación All of us como del centro de pruebas digitales de investigación Scripps. Ha sido destacada como Lupus Heroe de Lupus LA, escribió blogs para Lupus Research Alliance y forma parte de abogacía para el Lupus. También en marzo de 2018, Juana fue honrada como la Mujer del Año por la Asambleísta Blanca E. Rubio de la Asamblea del Distrito 48. Juana fue la asesora de pacientes con lupus de 2019 para Patients Like Me, la plataforma de pacientes personalizada más grande del mundo. En 2018 y 2019, Juana fue defensora del consumidor para la revisión científica del Departamento de Defensa, Programa de Investigación del Lupus de los Programas de Investigación Médica Dirigidos por el Congreso. Juana intercede ante funcionarios del gobierno local, estatal y nacional.

Migdalia Denis Consultor de grupos de apoyo y defensa del paciente. Director General de Latin Health Leaders (LHL). Fundador, CEO y presidente de la Sociedad Latina de Hipertensión Pulmonar (SLHP). Miembro fundador de la Fundación Venezolana de Hipertensión Pulmonar (FUNDAVHIP). Miembro del Comité de expertos de RDI. Chair de la mesa Redonda de Pacientes de ISPOR. Patient & Research expert. Dedicada al bienestar y cuidado de los pacientes en América Latina desde hace más de 16 años mediante la participación con ONG. Trabajó en colaboración para varias iniciativas de atención al paciente y participó como miembro inaugural del comité de Enfermedades Raras en la sede de las Naciones Unidas. Trabaja bajo la premisa de traer una perspectiva integral y humana a la industria sobre las necesidades de los pacientes en América Latina. Doctora Honoris Causa. Consultora Comunicacional y Gestión Estratégica. Máster Life Coach y marketing. Escritora. Speaker Internacional. Paciente Experto. Fundadora de la Sociedad Latina de Hipertensión Pulmonar. Miembro del Comité de Rare Diseases International.

Following their presentation Estela, Juana and Migdalia will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.

Patient Financial Assistance Programs For High-Cost Rx’s

September 28th, 2022

AAIDA hosted speciality pharmacist and AAIDA Medical Advisory Board member, Michael Rigas, PharmD, for our 6th educational webinar of 2022.

Dr. Rigas will discuss the following during his presentation:

  • Describe non-compliance in treatment adherence due to affordability and cost associated with filling high-cost prescriptions for patients
  • Share specific attributes of drug manufacturer sponsored patient financial assistance plans as well as options available from non-profit organizations
  • Review steps patients can take to start the process of applying for financial assistance from their local pharmacy

Dr. Rigas is retired Chief Clinical Officer, co-founder and principal at a national infusion company dedicated to patients living with chronic conditions. Prior to this, Dr. Rigas was Associate Chief Innovation Officer for Pharmaceutical Care for Geisinger Health System and Chief Clinical Officer for VITALine CareSite Pharmacy Services.

Dr. Rigas graduated from USC School of Pharmacy with his Pharm.D. degree and completed his residency at UC San Francisco Hospitals and Clinics in 1982. His areas of expertise include antimicrobial therapy, immunoglobulin therapies (IVIG), nutritional support, inotropic therapies and many others.

Dr. Rigas has worked on standardized coding for infusion billing, universal access via patient assistance plans and managing Medicare Part D issues in front of the California board of pharmacy and CMS regional managers. Dr. Rigas is a member of the American Society of Hospital Pharmacists, the National Home Infusion association, the American Academy of Neurology and the Clinical Immunology Society.

Following his presentation, Dr. Rigas will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels as a resource for our community.