Advocacy & Awareness for Immune Disorders Association (AAIDA)


How Cancer Became a 4 Letter Word

October 4, 2023 4:00-5:00 ET

AAIDA is thrilled to host mother and son duo, Ashlee and Michael Cramer.  Diagnosed with a rare cancer in July 2020, Michael and his mom have embraced multiple challenges as both a patient and caregiver. Join us as they share their experience to help educate and empower others for our 8th webinar of 2023.

Michael and Ashlee will discuss the following:

  • Personal connections, relationship building and vulnerability while living with a rare condition
  • Caregiver burnout vs patient burnout and ways they can present to others
  • Challenges of living with a rare diagnoses that include intimacy, fertility and family planning outcomes
  • How mental & emotional health and well-being play a roll in the healing journey for both patient and caregiver

Michael Cramer is a 22-year-old cancer survivor, bone marrow transplant recipient, social media influencer and motivational hero. Before his diagnoses, Michael was a surfer, skater, and on the Olympic Development team for windsurfing. He traveled the world competing and was the funny one on the team and full of adventure. On July 14, 2020, Michael was diagnosed with a rare and aggressive cancer, Hepatosplenic T-cell lymphoma. Less than 200 cases have ever been documented and the average survival rate is 8 months. Miraculously, more than 3 years later, he is still here!  Although he is still in treatment for many life-threatening complications from his cancer and bone marrow transplant, he is alive, in remission and inspiring others through his TikTok and IG and leads a support group for cancer survivors.

Through it all, Ashlee Cramer, never left Michael’s side. Their relationship became an unbreakable bond. Prior to Michael’s and her late husband’s cancer diagnoses, Ashlee was a dancer turned early childhood educator turned cancer caregiver. A widow and mother of three, she kept her positive, loving, energetic outlook on life. In 2016 Ashlee created the early childhood music and movement program for Zumba called Zumbini. She had her own studio, taught classes, trained instructors, created programs and still appears on the television show “Zumbini Time”, on the cable network BabyFirst. In recent years, Ashlee and Michael started a podcast, “Michael and Mom Talk Cancer”, and soon after, a website, a blog and YouTube videos. Together, Ashlee and Michael have taken heartbreak and found the “beauty in pain.

Following their presentation, Ashlee and Michael will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA websites and YouTube channels. 

What Cost Has to Do With It?: Factors Increasing Rx Cost

November 28th, 2023, 4:00-5:00 ET

For our next webinar of 2023, AAIDA will host clinical dermatologist and Past President of the American Academy of Dermatology (AAD), Mark Kaufmann, MD.

Dr. Kaufmann will discuss the following:

  • Factors driving the increasing cost of medications
  • Ways patients and healthcare providers can help drive transparency in drug pricing and expose exploitation
  • Strategies and tactics Pharmacy Benefits Managers (PBM’s) use to increase revenue and push more cost onto patients
  • Supply chain overview for prescription medications

Mark Kaufmann, MD, is a Clinical Professor in the Department of Dermatology at the Icahn School of Medicine at Mount Sinai in New York City and Immediate-Past President of the American Academy of Dermatology (AAD). Prior to joining Icahn School of Medicine in 1995, Dr. Kaufmann was in solo private practice for 23 years until he joined The Dermatology Group in November 2017. In September 2020, he joined Advanced Dermatology and Cosmetic Surgery as their Chief Medical Officer.

Dr. Kaufmann has served on the AAD Board of Directors as well as serving as Chair for other AAD committees. In addition, Dr. Kaufmann currently serves on the Board of Directors of the American Society for Dermatologic Surgery, the Florida Academy of Dermatology, and is an advisor to the AAD RUC team (Relative Value Scale Update Committee) – a position he has held for over a decade.

Dr. Kaufmann received his medical degree from New York University School of Medicine, completing residency training in dermatology at the Albert Einstein College of Medicine in the Bronx, New York and is board certified in dermatology. Dr. Kaufmann’s contributions to the American Academy of Dermatology have been recognized by his receiving a Presidential Citation in 2013, 2014, 2015, 2017, 2020, and 2022. With many articles published on the topic of health information technology, Dr. Kaufmann is a frequent national lecturer, including the AAD Annual Meeting, other national and regional societies and grand rounds.

Following his presentation, Dr. Kaufmann will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA websites and YouTube channels

Healthy Lungs for All: World Lung Day 2023

September 25th, 2023

During World Lung Day, we’d like to help educate our community on ways to keep lungs healthy as well as discuss various conditions and other factors that may impact lung health. AAIDA will host CardioPulmonary Physiotherapist, Dr. Shruti Shah, for this special World Lung Day presentation.

Dr. Shah will discuss the following:

  • Strategies to help prevent exacerbations and flares of pulmonary conditions and tips to care for your lung
  • Address inequalities in screening, diagnosis and treatments of lung disorders
  • Indoor and outdoor air pollution and the impact it has on lung health
  • Importance of early detection and screening to prevent damage or further exacerbations of underlying conditions

Dr. Shruti Shah is a CardioPulmonary Physiotherapist working in Mumbai, India. She is currently associated with Nandini Heart Clinic, Sion after working in Bhatia Hospital for two years. She is interested in spreading awareness about cardiopulmonary rehabilitation in chronic cardiac and pulmonary disorders as well as other conditions influenced by individual lifestyle factors. She pursued her Masters in cardiovascular and respiratory sciences from LTMMC – Government College in Mumbai after receiving her Bachelors degree in physiotherapy from Terna Physiotherapy College, Mumbai.

Following her presentation, Dr. Shah will conduct a live 15 minute Q&A session with attendees. 

Celiac Disease: Clinical Implications Beyond the Gut

August 24th, 2023

For our sixth webinar in 2023, AAIDA will host our own Medical Advisory Board member and pediatric gastroenterologist,  Ruba Abdelhadi, MD

Dr. Abdelhadi will discuss the following:

  • Understand the pathogenesis of Celiac Disease
  • Clinical presentation(s) and how symptoms may develop in multiple areas of the body
  • Complications and stages of disease progression and treatment options currently available
  • Difference between IBD, IBS and Celiac Disease

Ruba Abdelhadi, MD, is Professor of Pediatrics at the University of Missouri-Kansas City School of Medicine, Director of Nutrition Support at Children’s Mercy and the Associate Director for Education and Staff Development. Dr. Abdelhadi’s clinical scope of practice focuses on nutrition rehabilitation of children with various nutritional disorders in gastrointestinal conditions, undernutrition, nutritional rehabilitation in short gut and intestinal failure and malabsorption. Dr Abdelhadi also has a special interest in parenteral and enteral nutrition support.

Dr. Abdelhadi is a Diplomate of the American Board of Pediatrics and the American Board of Pediatric Gastroenterology, Hepatology and Nutrition who serves on multiple national boards. Dr. Abdelhadi sits as Secretary/Treasurer of the National Board of Physician Nutrition Specialists (NBPNS),  Chair of the ASPEN Pediatric Section and the ASPEN Malnutrition Committee. In addition, she serves on the Clinical Advisory Board of the Global Enteral Device Supplier Association (GEDSA).

Following her presentation, Dr. Abdelhadi will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA websites and YouTube channels. 

World Bronchiectasis Day Webinar

July 1, 2023

AAIDA is excited to parter with Global Allergy and Airways Patient Platform (GAAPP) for this special educational webinar on the 2nd annual, World Bronchiectasis Day! Our speakers from around the globe include Lauren Dunlap, PACS, Ashok Gupta, MD, and Ghulam Mustafa, MD. 

Lauren, Dr. Gupta and Dr. Mustafa will discuss the following:

  • World-view perspectives from both allergy/immunology and pulmonology specialist in diagnosis, epidemiology, therapeutic endpoints and advancements in treatment for non-cf bronchiectasis
  • Overlapping conditions often associated with non-cf bronchiectasis (immune deficiencies, infections, etc)
  • Disease management and lifestyle factors involved from a patient perspective when choosing treatment options and stigmas often associated with diagnosis


Dr. Ashok Gupta is a practicing pediatrician at SMS Medical College in Jaipur India and Chairman for the Rare Diseases Division and Pediatrics. Dr Gupta is also Chairman of Allergy Care India and current board member of the Global Allergy & Airways Patient Platform (GAAPP).

Prof. Dr. Ghulam Mustafa is a clinician (Head of the clinical medicine department, College of Medicine, Shaqra University, Consultant Pediatrician, Pediatric Pulmonologist), a Researcher (over 85 publications with an Impact factor of 1700 and over 28000 citations), a Community Health Worker (CEO of Helping Hands Foundation & Chairman of the Institute of Mother & Child Care), a Writer (national newspapers), a Presenter (national radio/TV channel), an Organizer (national/international conferences & symposia) and an Academician (Convener Pediatric Pulmonary Group of the Pakistan Pediatric Association & Coordinator Pediatric Lung Association, Convenor Pediatric Asthma Advisory Group Pediatric Cough Advisory Board).

In addition to being a Founding member (2003) & CEO of Helping Hands Foundation (HHF), a not-for-profit organization dedicated to providing health, education, and community empowerment, through culturally sensitive adventures, Dr. Mustafa is also Chairman of the Institute for Child Lung Health. The HHF is involved in Health Management & Awareness Program for Schools (Health-MAPS), Program for Asthma Screening in Schools (PASS) {free spirometry for schools}, Coordinated Access To Child Health CATCH), an advocacy program for parents, Initiative for Mother Milk Awareness in Newborns (IMMAN), Child Protection Against Labor And Neglect (Child PALAN) & Hand Wash And Save Health (Hand WASH) programs.

Lauren Dunlap is Executive Director and Co-Founder for Advocacy & Awareness for Immune Disorders Association (AAIDA) in Charlotte N.C. As an individual living with non-cf bronchiectasis, Lauren spends much of her time advocating for patients by spending time with lawmakers on Capitol Hill during specific Advocacy Days to voice patient concerns around access to medications and treatments, healthcare reform and other important topics in the healthcare community. Lauren has over 13 year’s experience in educating patients living with immune disorders and overlapping conditions. She has been a go-to resource for healthcare providers for many years by offering valuable insights and education regarding barriers to patient care, treatment and outcomes. To expand her advocacy efforts, Lauren become a board-certified Prior Authorization Certified Specialist (PACS) with the Accreditation Council of Medical Affairs in 2020. She felt this was vital to help patients navigate the prior authorization process that are often required in conjunction with expensive medications and treatments

Following their presentation Lauren, Dr. Gupta and Dr. Mustafa will conduct a live 15 minute Q&A session with attendees. 

This presentation is sponsored in partnership with Monaghan Medical and Zambon Group.