Advocacy & Awareness for Immune Disorders Association (AAIDA)

Webinars

Herramientas y Tips Para el Cuidado de Tu Salud

October 12th, 4:00-5:00 ET/ 1:00-2:00 PT

AAIDA se complace en asociarse con Looms for Lupus y Latin Health Leaders para nuestro primer seminario virtual en Español durante el Mes de la Herencia Hispana que se celebra del 15 de Septiembre al 15 de Octubre. Nuestro panel de discusión incluirá a Estela Mata, Juana Mata  cofundadoras de Looms for Lupus y Migdalia Denis, Directora Ejecutiva de Latin Health Leaders.

Herramientas y tips para:

  • El cuidado de tu salud física
  • El cuidado de tu salud mental
  • Seguir tus sueños con enfermedades crónicas
  • Adherencia de tratamientos
  • Comunicación con tus Medicos

Estela Mata es la presidenta y cofundadora de Looms for Lupus, una organización sin fines de lucro que brinda concientización, defensa y apoyo sobre el lupus, la fibromialgia y la salud mental a quienes viven con estas afecciones, sus seres queridos y cuidadores. Estela ha trabajado en el cuidado de la salud por más de 30 años. Como líder comunitaria y defensora de la atención médica, se asocia y trabaja en iniciativas en colaboración con organizaciones locales, nacionales y globales, incluida la Oficina de Salud de las Minorías del Departamento de Salud y Servicios Humanos de los Estados Unidos y la Oficina de Salud de las Minorías de la Administración de Alimentos y Medicamentos de los Estados Unidos para aumentar la conciencia sobre la necesidad de diversidad en los ensayos clínicos de lupus. Es miembro del Equipo de Asesores Virtuales tanto para el Programa de Investigación All of Us y el Centro de Ensayos Digitales de Investigación Scripps y participante en el Consorcio de Salud Mental de la Congresista Grace Napolitano. Estela es una líder comunitaria que provee información, apoyo y recursos en Inglés y Español.

Juana Mata es trabajadora social infantil del Departamento de Servicios para Niños y Familias y a trabajado para el condado de Los Ángeles. Juana también es una de las cofundadoras de Looms for Lupus, una organización sin fines de lucro que brinda apoyo a los sobrevivientes de lupus, sus familias y cuidadores. Se dedica a crear conciencia, autodefensa y defensa del lupus, la fibromialgia y la salud mental.  Juana ha sido entrevistada por Telemundo sobre su experiencia con el lupus, compartió su historia con la California Chronic Care Coalition, My Patient Rights. Es embajadora nacional del programa de investigación All Of us de los NIH, así como miembro del equipo de asesores virtuales tanto del programa de investigación All of us como del centro de pruebas digitales de investigación Scripps. Ha sido destacada como Lupus Heroe de Lupus LA, escribió blogs para Lupus Research Alliance y forma parte de abogacía para el Lupus. También en marzo de 2018, Juana fue honrada como la Mujer del Año por la Asambleísta Blanca E. Rubio de la Asamblea del Distrito 48. Juana fue la asesora de pacientes con lupus de 2019 para Patients Like Me, la plataforma de pacientes personalizada más grande del mundo. En 2018 y 2019, Juana fue defensora del consumidor para la revisión científica del Departamento de Defensa, Programa de Investigación del Lupus de los Programas de Investigación Médica Dirigidos por el Congreso. Juana intercede ante funcionarios del gobierno local, estatal y nacional.

Migdalia Denis Consultor de grupos de apoyo y defensa del paciente. Director General de Latin Health Leaders (LHL). Fundador, CEO y presidente de la Sociedad Latina de Hipertensión Pulmonar (SLHP). Miembro fundador de la Fundación Venezolana de Hipertensión Pulmonar (FUNDAVHIP). Miembro del Comité de expertos de RDI. Chair de la mesa Redonda de Pacientes de ISPOR. Patient & Research expert. Dedicada al bienestar y cuidado de los pacientes en América Latina desde hace más de 16 años mediante la participación con ONG. Trabajó en colaboración para varias iniciativas de atención al paciente y participó como miembro inaugural del comité de Enfermedades Raras en la sede de las Naciones Unidas. Trabaja bajo la premisa de traer una perspectiva integral y humana a la industria sobre las necesidades de los pacientes en América Latina. Doctora Honoris Causa. Consultora Comunicacional y Gestión Estratégica. Máster Life Coach y marketing. Escritora. Speaker Internacional. Paciente Experto. Fundadora de la Sociedad Latina de Hipertensión Pulmonar. Miembro del Comité de Rare Diseases International.

Following their presentation Estela, Juana and Migdalia will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.

Tips & Tools To Keep You Safe Online: Cyber Security Part II

October 19th, 4:00-5:00 ET
AAIDA will host cyber security expert, Igor Pinchevskiy, for our 8th educational webinar during 2022. Igor will expand on his discussion around best practices to protect yourself from healthcare and online scams from his previous webinar on June 22nd, 2022.
Igor will discuss the following:
  • Best practices on how to create a secure password to keep your sensitive information safe
  • Tips for safely maneuvering around the world wide web and evolving technology
  • How to protect yourself from becoming a victim to “phishing” scams online
  • How to monitor your phone, computer and other electronic devices to avoid becoming a victim of cyber crimes

Igor Pinchevskiy began his career in Information Technology (I.T) in 1999 after graduating with a degree in Network Engineering.  Igor specializes in I.T. managed services, security assessments, vulnerability testing, and industry-specific cyber security and compliance standards. This includes HIPAA, NIST framework, PCI DSS, and PII. Igor runs an I.T. service and cybersecurity consulting firm specializing in helping nonprofits and businesses. Igor build, maintain and secures organizations I.T. environments by helping them to meet industry security requirements.

Following his presentation Igor will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.

Patient Financial Assistance Programs For High-Cost Rx’s

September 28th, 2022

AAIDA hosted speciality pharmacist and AAIDA Medical Advisory Board member, Michael Rigas, PharmD, for our 6th educational webinar of 2022.

Dr. Rigas will discuss the following during his presentation:

  • Describe non-compliance in treatment adherence due to affordability and cost associated with filling high-cost prescriptions for patients
  • Share specific attributes of drug manufacturer sponsored patient financial assistance plans as well as options available from non-profit organizations
  • Review steps patients can take to start the process of applying for financial assistance from their local pharmacy

Dr. Rigas is retired Chief Clinical Officer, co-founder and principal at a national infusion company dedicated to patients living with chronic conditions. Prior to this, Dr. Rigas was Associate Chief Innovation Officer for Pharmaceutical Care for Geisinger Health System and Chief Clinical Officer for VITALine CareSite Pharmacy Services.

Dr. Rigas graduated from USC School of Pharmacy with his Pharm.D. degree and completed his residency at UC San Francisco Hospitals and Clinics in 1982. His areas of expertise include antimicrobial therapy, immunoglobulin therapies (IVIG), nutritional support, inotropic therapies and many others.

Dr. Rigas has worked on standardized coding for infusion billing, universal access via patient assistance plans and managing Medicare Part D issues in front of the California board of pharmacy and CMS regional managers. Dr. Rigas is a member of the American Society of Hospital Pharmacists, the National Home Infusion association, the American Academy of Neurology and the Clinical Immunology Society.

Following his presentation, Dr. Rigas will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels as a resource for our community.

Keeping You Safe: Cyber Security & Your Protected Health Information (PHI)

June 22nd, 2022

AAIDA hosted cyber security expert, Igor Pinchevskiy, for our 5th educational webinar during 2022.

Igor will discuss the following:

  • Strategies to prevent you from becoming a victim to online healthcare scams
  • Best practices for keeping your PHI and other sensitive information secure
  • Tips on how to keep you safe online with evolving cyber crimes around healthcare technology

Igor Pinchevskiy began his career in Information Technology (I.T) in 1999 after graduating with a degree in Network Engineering.  Igor specializes in I.T. managed services, security assessments, vulnerability testing, and industry-specific cyber security and compliance standards. This includes HIPAA, NIST framework, PCI DSS, and PII. Igor runs an I.T. service and cybersecurity consulting firm specializing in helping nonprofits and businesses. Igor build, maintain and secures organizations I.T. environments by helping them to meet industry security requirements.

Following his presentation, Igor will conduct a live 15 minute Q&A session with attendees.

Immune Health vs Mental Health: The Mind-Body Connection

May 24th, 2022 7:00-8:00pm ET

AAIDA hosted Radley Ramdhan, ND, for our 4th educational webinar during 2022.

Dr. Ramdhan will discuss the following:

  • How stress & trauma are connected to the body and the impact they have on the immune system
  • Ways stress and trauma affect symptoms and/or flares in Autoimmune conditions
  • Tips for healing trauma and managing stress while living with an immune disorder

Dr. Radley Ramdhan, ND, is a practicing Doctor of Naturopathic Medicine and Acupuncturist in Trinidad. Originally from Brooklyn, N.Y, Dr. Ramdhan completed his undergraduate degree at Barry University in North Miami, Florida where he received his Bachelor of Science in Biology, with a minor in Chemistry. He then attended University of Bridgeport in Connecticut where he completed his Master of Science in Acupuncture and Doctorate in Naturopathic Medicine. During his time at University of Bridgeport, he served in the United States Army as part of the New York Army National Guard for 6 years and grew a special interest in mental health and Post Traumatic Stress Disorder (PTSD). As a result, he completed his thesis on “Understanding And Treating PTSD Using A Naturopathic Approach”. Dr. Ramdhan served a tour with his New York Army National Guard Unit in Kuwait and Iraq in support of Operation Inherent Resolve (2016/2017).

Dr. Ramdhan has been co-authors to two articles published by Naturopathic Doctor News and Review relating to PTSD and traumatic brain injury (TBI), and has authored his first published book: “Trauma to PTSD: Root Causes to Healing Branches“. Dr. Ramdhan has also conducted multiple presentations on PTSD and trauma with various organizations including the Association of Accredited Naturopathic Medical Colleges (AANMC) and continues to be a featured as a Keynote Speaker at the Global Virtual Panel of Veterans Event.

Dr. Ramdhan sees clients both in person and virtually.

Following his presentation, Dr.  Ramdhan will conduct a live 15 minute Q&A session with attendees.