Advocacy & Awareness for Immune Disorders Association (AAIDA)
Advocacy & Awareness for Immune Disorders Association (AAIDA)
AAIDA is excited to parter with Global Allergy and Airways Patient Platform (GAAPP) for this special educational webinar on the 2nd annual, World Bronchiectasis Day! Our speakers from around the globe include Lauren Dunlap, PACS, Ashok Gupta, MD, and Ghulam Mustafa, MD.
Lauren, Dr. Gupta and Dr. Mustafa will discuss the following:
Following their presentation Lauren, Dr. Gupta and Dr. Mustafa will conduct a live 15 minute Q&A session with attendees. This webinar will be recorded live and made available on the AAIDA and GAAPP websites and YouTube channels.
This presentation is sponsored in partnership with Monaghan Medical and Zambon Group.
AAIDA hosted speciality pharmacists, Alexis El-Khouri, PharmD, and Kipp Tiger, PharmD, CSP, for our fourth webinar of 2023.
Dr. El-Khouri and Dr. Tiger will discuss the following:
Kipp Tiger PharmD, CSP, is a practicing clinical pharmacist at Summa Health Specialty Pharmacy (Trellis RX) in Akron Ohio where he specializes in neurology and neuroscience services. Kipp earned his doctorate in pharmacy from Lake Erie College of Osteopathic Medicine (LECOM) and began his pharmacy career at Walgreens. His emphasis on medication therapy management (MTMs) and medication advocacy in the community setting led to being recognized as the regional “Champion of Champions” for customer service. In 2018, Kipp began his focus on specialty medications, primarily in the fields of endocrinology, cardiology and neurology and in 2020, Kipp became the lead neurology pharmacist for the launch of Summa Health Systems Neuroscience and Neurosurgery department. Since then, Kipp has been integral in the advancement of services for treating neurologic disease states including multiple sclerosis, migraine, epilepsy, myasthenia gravis, amyotrophic lateral sclerosis, CIDP and many others. Kipp’s passion for patient advocacy and care is only matched by his passion for his family and Cleveland sports teams.
Following their presentation Dr. El-Khouri and Dr. Tiger will conduct a live 15 minute Q&A session with attendees.
For our third webinar this year, AAIDA’s will host our own Medical Advisory Board Chair and speciality pharmacist, Michael Rigas, PharmD.
Dr. Rigas will discuss the following:
Dr. Rigas is retired Chief Clinical Officer, co-founder and principal at a national infusion company dedicated to patients living with chronic conditions. Prior to this, Dr. Rigas was Associate Chief Innovation Officer for Pharmaceutical Care for Geisinger Health System and Chief Clinical Officer for VITALine CareSite Pharmacy Services. Dr. Rigas graduated from USC School of Pharmacy with his Pharm.D. degree and completed his residency at UC San Francisco Hospitals and Clinics in 1982. His areas of expertise include antimicrobial therapy, immunoglobulin therapies (IVIG), nutritional support, inotropic therapies and many others.
Dr. Rigas has worked on standardized coding for infusion billing, universal access via patient assistance plans and managing Medicare Part D issues in front of the California board of pharmacy and CMS regional managers. Dr. Rigas is a member of the American Society of Hospital Pharmacists, the National Home Infusion association, the American Academy of Neurology and the Clinical Immunology Society.
Following his presentation, Dr. Rigas will conduct a live 15 minute Q&A session with attendees.
AAIDA hosted Simu Thomas, Ph.D, of Alexion Pharmaceuticals and Shelby Harrington, RN, of Avalere, for our 2nd educational webinar during Rare Disease Week, 2023.
Simu and Shelby will discuss the following:
Shelby Harrington, RN, is Principal at Avalere who began her career at Carolinas HealthCare System (now Atrium Health) as a staff nurse in orthopedics and trauma care in Charlotte, N.C. Shelby now supports clients in navigating the transition to value-based care with a focus on clinical quality, strategy, and digital transformation. Recently, Shelby has helped life sciences manufacturers develop value-based care strategies to characterize patient-centric outcomes linked with their products (e.g., improved mental health, relationships, and employment, and ability to work and parent), particularly for rare and chronic diseases. Shelby has also served as senior product director for quality and regulatory technology at Premier, Inc., overseeing hospital regulatory products, provider registries and value analytics products. Shelby holds a bachelor’s degree in public policy analysis from the University of North Carolina at Chapel Hill and bachelor’s and master’s degrees in nursing from Virginia Commonwealth University.
Simu Thomas, Ph.D., is Vice President of Global Head Health Economics & Outcomes Research for Alexion Pharmaceuticals, AstraZeneca Rare Disease. Prior to joining Alexion, Simu was the Global Head of Value & Access for Rare Diseases at Novartis, Global Head for the Cell & Gene Therapy Unit, where he developed the Value Access strategy for rare diseases and the first CART therapy approved in the world. He was also the founding architect of the IMI HARMONY data initiative. Simu ran the Economic Modeling organization at Novartis and has authored more than 35 manuscripts and 75 congress presentations and co-authored book chapters in the field of Health Economics. Simu holds a PhD in Pharmaceutical Economics from the University of Maryland and MS in Pharmacy Administration from the University of Toledo and Pharmacy degrees. Simu also serves as Adjunct Assistant Professor at University of Maryland and Rutgers University of New Jersey.
Following their presentation Shelby and Simu will conduct a live 15 minute Q & A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channel in the following days.
This presentation was sponsored in partnership with Alexion Pharmaceuticals.
Kicking off our next webinar series for 2023 will be AAIDA’s own Executive Medical Director, Jennifer Caicedo, MD, FACAAI, FAAP.
Dr. Caicedo will discuss the following:
Jennifer Caicedo, MD, FACAAI, FAAP, is a practicing allergist/immunologist in Charlotte, N.C, at Carolina Asthma & Allergy Center. Dr. Caicedo is a Fellow of both the American College of Allergy Asthma & Immunology (ACAAI) and the American Academy of Pediatrics (AAP). Dr. Caicedo is Past President of the Charlotte Pediatric Society, where she still serves on the organization’s Board. She is also a Past President of the North Carolina Allergy Asthma & Immunology Society.
Dr. Caicedo has been involved in multiple clinical research studies in food allergy, atopic dermatitis, eosinophilic esophagitis, and asthma as well as multiple national quality improvement studies. Dr. Caicedo believes strongly in advocacy and has been actively involved in both her local and national medical communities. Dr. Caciedo was proud to assist in the efforts to obtain funding for one registered nurse for every local public Charlotte Mecklenburg School (CMS) as well as implementing stock epinephrine throughout CMS.